Your birth on April 18th 2015 was the happiest day of my life. You know, less than a year before your arrival, you had a big brother but he had the wings of an angel. So when I held you in my arms for the first time, it was both a relief and the culmination of a big dream; becoming a mother. You arrived 4 weeks earlier than expected after nearly 23 hours of labor.

Photo credit: Jessica Côté
When I saw you for the first time, I was ecstatic but this little voice inside my heart and my head was telling me that something wasn’t right. I guess we can call it intuition. When I changed your diaper for the first time, I noticed right away this little malformation on your skin in your lower back. I didn’t waste any time; I spoke to your doctor and from then on, a range of specialists entered your life and you have had to undergo a whole battery of tests that caused you to suffer more often than not. All the doctors seemed worried but nobody knew what was really going on so we were referred to different specialists. Continue reading →